So Good So Far . . .

November 20, 2011

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Just a quick update for the remaining handful of hardcore family and friends still checking on Meg’s progress.

Things generally have been going very well, praise God.  Following Meg’s seizure last month she underwent a “sleep deprived” EEG and the results basically came back normal.  The one caveat is that despite being kept up until 2pm and getting up at 5am Meg could not fall asleep during the “sleep” portion of the test.  She said there was nurse sitting besides her the whole time making it impossible for her to doze off.  Frankly, I don’t think I could fall asleep with someone sitting right next to me.  I can’t even sleep on a plane.  So aside from failing the sleep portion of the test Meg’s brain responded normally to the other tests which include her reaction various strobe lights and other stimuli designed to induce some sort of seismic response (I’m sure “seismic” is not the clinical term, but I think it fits).  In any case, she will have to retake the test in January and next time I think we’ll just keep her up all night, which, according to some websites, is the normal procedure for someone her age.  Either that or maybe they have some way to monitor her brainwaves while at home sleeping (which would be preferable as I’ll be the one in charge with keeping her up all night).

In the meantime, Meg is still on a fairly heavy dosage of the anti-seizure medication Keppra which makes her more than a bit tired and irritable.  She has a hard time controlling her anger as it is, so having her even more edgy is, well, edgy. Thankfully the neurologist recently scaled back her dosage if only slightly, but I haven’t really noticed any improvement.  Hopefully, they’ll be able to scale it back altogether after the next EEG.

Meg is wrapping up PT and Speech this month; although trying to get her motivated to continue with her various exercises and progressing on Luminosity (thanks Kim) is becoming a challenge (not sure if a lack of motivation is Keprra or brain related).  In addition, she is scheduled (at least tentatively) to have her “bone flap” replaced in December.  Last we checked back in August, Dr. Gurnter, her neurosurgeon, said the piece of skull they removed during Meg’s emergency craniotomy is still in a deep freeze at Norfolk General.  God willing it remains well frozen and in good shape.  As I understand it infection is the real danger with this surgery and is fairly common.  If that happens, or if some bizarre reason her body rejects her own bone or it doesn’t take, she may have to have a ceramic or titanium plate inserted to cover the hole.  (FWIW, I watched a craniotomy on youtube the other day.  Actually, I should say I tried to watch it).  Also, a plastic surgeon will also have to be on hand to repair some muscle damage that occurred as a result of the original surgery and is causing the side above her right eye to droop a bit.  So, while Gurtner’s office staff put her on the schedule they informed us last week that they had no idea that a plastic surgeon also needed to be on hand, and, what do you know, they blamed me for not telling them.  Not knowing that was my responsibility, maybe I should tell them they’ll need an anesthesiologist on hand too.  So, depending on whether they can also schedule the plastic surgeon we’ll see if this all happens next month. I’m not particularly optimistic, but God willing.  Meg has a meeting with Dr. Gurtner in a couple of weeks and she’ll get another CAT scan.  However,  getting that bone flap replaced sooner rather than later will be a big relief.  Besides not having to worry about her hitting her head and re-injuring her brain, it will be nice to get Meg back into softball in the Spring, and, hopefully, so she can look forward to a normal (i.e., fun) summer next year.

So, please, continue to pray that her brain continues to heal, that there are no more seizures, and that her bone flap surgery goes off on schedule and without a hitch.

Jesus said; “It is the Spirit who gives life; the flesh profits nothing. The words that I speak to you are spirit, and they are life. But there are some of you who do not believe.” For Jesus knew from the beginning who they were who did not believe, and who would betray Him. And He said, “Therefore I have said to you that no one can come to Me unless it has been granted to him by My Father.”

From that time many of His disciples went back and walked with Him no more. Then Jesus said to the twelve, “Do you also want to go away?”  But Simon Peter answered Him, “Lord, to whom shall we go? You have the words of eternal life.”

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